area of Spain for the past 12 years. We had a holiday house
here, but moved permanently in 1995 when my wife took early
retirement from her teaching job. Before that we had lived for
many years in Bristol. I have been involved with cancer in many
ways in both countries over the past 40 years.
My mum died of cancer in 1977 at the age of
65. She had her first operation in 1967, and it tells you how
secretive people were about the disease in those days that none
of her three sons were told this, although we were all mature
adults by then. I only realized after her death that she had had
10 good years in remission, thanks to a brand new drug with
which she was the first person in Northern Ireland to be
treated. But I still don’t even know what kind of cancer she
had – it was just enough at that time that someone simply had
the dreaded “big C.”
It left me alone for a while, until I started
to do some work with Macmillan Nursing and the Hospice Movement
in the early 1990s. Filming in three different hospices, cancer
was everywhere. There were people suffering from many different
illnesses, but cancer was much the most prevalent. This work
culminated in making a television documentary 1995 for HTV
called In the Midst of Life.
It was a simple story of the last 6 months in
the life of a 40-year-old women from Bridgwater, a mother of
three children called Jenny Painter who developed a brain
tumour. With extraordinary generosity, Jenny gave me complete
access to her life and family and took me as a companion on her
final journey. She knew that sharing the problems she
encountered and the insights she gained could be of some help to
other cancer sufferers, and equally to the friends and families
who would survive them. Jenny’s gift was to show me that the
only way to deal with something like cancer was not to hide from
the reality but to embrace it – and live life to the full
despite it.
Shortly after arriving to live in Mojácar
the wife of a close friend who had lung cancer invited me on the
same journey, minus the cameras. Then one of our neighbours went
down with prostate cancer. He lived on his own, so my wife
looked after him for most of the last year. When another,
younger, neighbour contracted a malignant melanoma (skin cancer)
which eventually spread to other areas, they decided to go back
to England after fighting it for a year. It was only then that
it dawned on me how little practical or emotional support there
was for an English-speaking community of cancer sufferers.
And then Elaine Brown called me out of the
blue. She wanted to start a self-help group for cancer patients
and survivors, and knew I had had experience of starting a
similar group for another illness. We met over coffee and talked
for a couple of hours. I was tremendously struck by Elaine’s
bravery and a total absence of self-pity. She had just finished
a very tough course of chemotherapy, and -- even in July! -- was
wearing a little wooly bobble hat to protect her head. I shared
what experience I had, and promised to be in touch again when I
returned from a forthcoming trip to England at the end of
August.
I didn’t know then that it would be almost
the end of October before I was back. I had been dogged for a
month by a persistent bronchial hoarseness, which refused to
shift in the face of all kinds of ordinary remedies, so I went
to my former GP in Bristol, thinking I would get a course of
antibiotics.
Instead, I got a referral on the fast-track
system to an ENT consultant at Southmead Hospital. An X-ray
revealed that my lungs were all clear, but an examination
discovered a lump on my vocal chord. A biopsy revealed that it
was a malignant tumour. I had cancer of the larynx. A second
operation – a laser resection -- removed all traces of the
cancer, and this was confirmed a fortnight later after the
tissue had been reconstructed and analysed in a laboratory.
I don’t have adequate words to say how
lucky I have been. Because the tumour grew on my vocal chord it
was apparent absolutely straight away, so the cancer was in its
early stages. I was in the right place at the right time for it
to be discovered. The treatment I received was both swift and
superb. The surgical procedure is still very new (in both
England and Spain) and I found myself in the care of the UK’s
leading exponent of it. I hadn’t seen a doctor professionally
in 25 years, and – being August – I got only a temporary
locum. But she spotted the potential problems straight
away. Some years previously I had a researcher working for me
who went through three consecutive courses of antibiotics and
months of discomfort mounting to agony before she was referred
to a consultant. He discovered she had cervical cancer.
By the end of October I had been given the
“all clear,” as much as any cancer patient can ever
be free from the disease. I was free to go back to Spain and get
on with life – subject to six-weekly check-ups for the next
year. Family and friends, for whom the whole process had been
fraught with anxiety, were all delighted. I, too, should have
been bouncing off the ceiling with delight.
I wasn’t. I was flat and depressed. I was
physically still sore, permanently tired and thrown into despair
by the smallest thing. Nobody around me could understand, or
explain, the depth of my despair. I certainly couldn’t.
I rang Elaine to tell her that I was no
longer a helpful consultant in her venture but a fully paid-up
participant! Many years ago I had battled problems with alcohol
and drugs by simply getting together with others who had been
down the same road, and who were willing to share their
experience, strength and hope with me. I know at first hand that
any group of people who share a common condition can help each
other in ways that no amount of skillful professional help can
provide. The collective strength is always much more than the
sum of the individual parts.
The support needed is both emotional and
practical. In the Mojácar area we expats rarely speak more than
basic Spanish because we’ve never needed to – we can get by
in English. Translators and interpreters are essential, but
someone has to find them, vet them and make them available. We
don’t have a lifetime’s experience of how things are done in
Spain – someone needs to collect and collate a database of
advice and guidance.
A diagnosis of cancer can be both numbing and
terrifying. In Bristol, I had a friend who is a doctor (his wife
and mine both taught in the same primary school). Titch offered
to accompany me to every appointment, if necessary to explain
anything I didn’t understand and to ask the questions which I
might be too fuddled to ask. As it happened, I had a surgeon
whose manner and communication skills were as good as his
surgery – but it was a wonderful moral support to have someone
like that with me. I was lucky – not everyone is. That is
where, if we have the courage and confidence, we can support
each other.
We may have collective strength, but it
always takes a single individual to stand up, make the first
move and invite others to join in. Elaine did that. There are no
adequate words with which to thank her.